Matthias was diagnosed with retinoblastoma, a childhood cancer of the eye, when he was an infant.
Matthias never took a pacifier. He had a wicked gag reflex, so we had to find other ways to soothe him. Music became his pacifier, and we relied on it heavily.
He had a mobile which played music in his crib, and a stuffed seahorse which played soft music given to him by his brilliant Aunt Leslie and Uncle Pete. And when all else failed, he had me.
I sang to Matthias all of the time. I sang when I needed him to eat, as I changed his diaper, and when he was in the bath. I sang when I needed to clean his central line, when he was feeling rotten, and when the nurses needed him to sit still to do some sort of medical procedure.
I sang to him as he awoke from surgery, to let him know his sight was gone but Mommy was still there. I sang every time someone stuck him with a needle. I sang as I pinned my screaming toddler down so I could remove and clean his prosthetic eyes. I sang to soothe my hurting baby, and it worked most of the time.
Matthias with his mom. Matthias is one of five 2013 Ambassador Kids.
This past October we had our fall family camping trip. We love the sounds and smells of the woods, and camping is emerging as a favorite family activity. The first night out, we were sitting around the campfire, our bellies full from dinner, nibbling our sweet s’mores, smelling that smoky campfire smell, listening for owls and bats and other nightlife in the woods, feeling the cool night air offset by the warmth of the fire. Matthias asked me to sing. We sat under the stars, among the trees, bundled against the night air, singing the songs I had sung to him since he was a baby.
To him, it was just singing a couple of songs around the campfire. To me, it was my favorite moment of the entire year.
Matthias and his mom on their camping trip.
Singing got me through the toughest times of our lives, and now it enhances the finest moments.
Share your Moments Like This with us and turn your holidays into hope for kids with cancer like Matthias.
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