Childhood Cancer

Looking for a Cure Far From Home: Shauntelle’s Story

by Erinn Jessop, St. Baldrick's Foundation
February 15, 2018

Childhood cancer knows no borders – but neither does research. In fact, funding kids’ cancer research saves the lives of kids across the globe. This International Childhood Cancer Day, meet Honored Kid Shauntelle, a 19-year-old from Ireland who left everything familiar behind so she could have her best chance at life.

Shauntelle

Thanks to a successful fundraising campaign, Shauntelle and her family were able to move from their home in Ireland to Houston, Texas for cancer treatment.

Honored Kid Shauntelle lives about an hour south of the city of Dublin in Ireland. Four years ago, when she was 15 years old, she noticed rashes popping up on her body. She thought she was scrubbing too hard in the shower or was allergic to her body wash.

“For a while, I just didn’t think to speak up. It was a big pain and a big part of my life, but it was a bit embarrassing,” Shauntelle said. “I wasn’t sure if I was doing something wrong.”

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Real-Life Stories

‘The Miracle Kid’: The Story of Brittany Ross

by Erinn Jessop, St. Baldrick's Foundation
January 30, 2018
Brittany smiles during her wedding day

A childhood cancer survivor, Brittany Ross smiles during her long-awaited wedding day to her fiance, Patrick.

When Honored Kid Brittany Ross was told that she’d be lucky to live another three weeks, she didn’t react with sadness. She didn’t bury her head under her hospital bed blankets and cry or ask, ‘Why me?’

She was mad. She was fired up. She was determined to beat childhood cancer.

“They made it seem like I had no chance,” Brittany said of her diagnosis in December 2000. “At this time, I was like, ‘Look, I’m 15 years old. I haven’t really started living my life yet.’”

And she had a come-back that any teenager would be proud of.

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Head-Shaving

When Life Got Tough for Alyssa, She Dreamed Big — And Gave Back

by Erinn Jessop, St. Baldrick's Foundation
October 19, 2017
Alyssa takes a selfie

Alyssa takes a selfie before shaving her head for childhood cancer research.

When Honored Kid Alyssa Greenwell says she’s a medical mystery, she’s not kidding.

“I really am a medical mystery,” she said. “My legs are in a medical journal.”

Why?

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Families

Good News and a Special Visit: An Update on Honored Kid Zach

by Nancy Swart
August 31, 2017

There’s nothing sweeter than a reunion with someone you love. Nancy Swart knows that better than anyone. Earlier this month, she had the happiest of reunions with her son Zach, who has been away from home to get treatment for leukemia. Read on for more from Nancy about the time they spent together, how Zach is doing since his bone marrow transplant and the news that made him smile.

Nancy and Zach

Nancy and Zach have a special moment together.

Zach’s dad, Tom, has been living with Zach in an apartment we have been renting in New York City, so that we can be close to the hospital for follow-up visits. It has been great for Tom to be able to spend time with Zach and I know Zach has needed some quality time with dad, so it has been a nice change to get some male bonding time.

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Advocacy

St. Baldrick’s Advocate of the Month: Diana Toohey

by Erinn Jessop, St. Baldrick's Foundation
July 27, 2017

This July, St. Baldrick’s Advocate of the Month is Diana Toohey, the mom of Honored Kid Ethan. From his mom’s advocacy on Capitol Hill to the $325,000 raised in Ethan’s honor by his local St. Baldrick’s events, his story has made a big impact. Read on to learn why Ethan is such a huge inspiration to so many people, including his mom, and why she speaks up for kids’ cancer research in his honor.

Ethan in his favorite green shirt

Ethan smiles while wearing his favorite green shirt, which was emblazoned with the words, “Team 2E” in honor of Ethan and his family. Kids at his high school wore the shirts at a fundraiser in Ethan’s honor on the day he died.

Diana Toohey travels to Washington, D.C., for Childhood Cancer Action Days, she calls and emails her legislators, and speaks up for kids’ cancer research whenever she can. She does all of this so kids with cancer get the treatments and cures they need to survive.

But there’s another reason she makes those phone calls and knocks on those doors.

She loves saying her son’s name — Ethan.

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Kids with Cancer

Teaching Good Cells to ‘See’ Cancer: Researcher Uses CAR T Cells to Help Kids Like Zach [VIDEO]

by Erinn Jessop, St. Baldrick's Foundation
July 19, 2017

From CAR T cell therapy in May to a bone marrow transplant in June, over the past few weeks we’ve been following the tremendous journey of Honored Kid Zach Swart. Now we bring you another angle — a closer look at the St. Baldrick’s-funded research that has changed Zach’s life.

Dr. Kevin Curran

St. Baldrick’s researcher Dr. Kevin Curran meets with a patient at Memorial Sloan Kettering Cancer Center.

A couple months ago, Zach Swart went through yet another medical procedure; one more to add to an already substantial history of biopsies and blood draws.

But this procedure was different than a typical needle poke.

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Families

A Life Saved in Six Minutes: An Update on Zach [VIDEO]

by Nancy Swart
July 5, 2017

Last week, we shared Honored Kid Zach’s amazing story and the news that the three-time cancer fighter was going to get a bone marrow transplant — a procedure that could put the 15-year-old into remission for good. Today, about a week after the transplant, Zach’s mom has an update.

Zach and his family before his BMT

The family gathers before Zach’s bone marrow transplant. From left to right: Nancy, Ben, Tom and Zach, with Gabe on Facetime.

My son, Zach, is fighting cancer for the third time, which means this is the third time going through tests, treatments and all the uncertainties that follow. Zach had three months of intense chemo therapy to try to get him into remission before his bone marrow transplant or BMT. At the end of his treatments, through numerous hospitalizations, we learned that Zach was not in remission.

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Kids with Cancer

A Tale of Two Worlds: Emily’s Story of Survival

by Erinn Jessop, St. Baldrick's Foundation
June 3, 2017

Today is National Cancer Survivors Day and in celebration, we are bringing you the survivorship story of 2013 Ambassador Emily, who was diagnosed with osteosarcoma as a 16-year-old. Now nearing five years cancer free, she’s a huge advocate for kids’ cancer research. She wants to see all kids with cancer leave the childhood cancer world behind — for good. Read on for more about Emily, her treatment and its effects, and what it’s like to be a survivor.

Emily before and Emily after

Emily in 2013, during her treatment for cancer (left) and Emily last month (right) in New York City, which she’s made her home after graduating from New York University.

Emily lives in two worlds.

In one, she just graduated from New York University, is cruising the Adriatic Sea over the summer, and snagged her dream job in television production.

The other world is different.

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Families

18-Year-Old Cancer Fighter Gives Back by ‘Painting the Town Gold’

by Erinn Jessop, St. Baldrick's Foundation
May 9, 2017

When Todd Schultz shaved with St. Baldrick’s in 2013, he had no idea that just a few months later he’d be diagnosed with kids’ cancer. Read on for more about Todd’s diagnosis and how he’s raising awareness, plus vital dollars for research, as the founder of a St. Baldrick’s non-profit partner — Painting the Town Gold.

Todd Schultz is the 18-year-old founder of Painting the Town Gold

Todd Schultz is the 18-year-old founder of the St. Baldrick’s partner Painting the Town Gold.

Two weeks before his diagnosis, Todd Schultz was on the football field. The 13-year-old was a linebacker — strong, fit and ready to do what it took to keep the other team from stopping the ball.

He was lifting weights to get even stronger and acting as the umpire at kids’ baseball games. His hair was just growing back after shaving it with St. Baldrick’s in honor of a little girl he knew who was diagnosed with children’s cancer.

Todd was healthy, with his freshman year of high school just around the corner.

Then everything changed.

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Survivors

‘Our Own Little Valentine’s Day’: Ambassador Sarah’s Wedding Story

by Sarah Rostock
February 14, 2017

Just in time for Valentine’s Day, your favorite lovebirds are back — 2012 Ambassador Sarah and her honey Patrick. You remember how it all began, almost 10 years ago — boy meets girl, girl fights cancer with boy by her side, boy pops the question. Now read on for the happiest of happy endings.

Sarah and Patrick on their wedding day

Photos courtesy of Chelsie Darling Photography

Patrick and I tied the knot on October 29, 2016. It started like any other good day, with Starbucks and reflection.

I kept thinking, ‘I am about to marry the man who had loved me through it all — through long distances, relapse, transplant, recovery, and finishing my degree. He has never failed to love me.’

I had no fears about our marriage standing the test of time, because we had already been through so much together. Our wedding day had been more than nine years in the making – and what a day it was!

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