Head-Shaving

5 Reasons to Shave Your Head on St. Patrick’s Day

by St. Baldrick's Foundation
March 3, 2020

Looking for a great way to celebrate St. Patrick’s Day AND make a difference? Go bald and #DFYchildhoodCancers with the world’s largest private funder of pediatric cancer grants!

woman with St. Paddy's gear

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Research

Research Outcomes: Climbing Toward Cures for Childhood Cancers

by Becky C. Weaver, Chief Mission Officer, St. Baldrick's Foundation
March 3, 2020

Editor’s Note: Last August, we began a series of blog posts on the outcomes of research that you, our donors, help to fund. Becky Chapman Weaver, Chief Mission Officer, St. Baldrick’s Foundation, provides us with an update.

man in lab

If you think of a new cure as the top of an enormous mountain, imagine all the work that comes before anyone can stand on that summit for the first time. It takes discovering which routes lead to the top and which are dead ends or sheer cliffs. It takes knowing how to avoid mountain lions, grizzly bears and avalanches. And it takes putting one foot in front of another thousands of times – and often mounting new ascents year after year.

In the world of research, we can think of basic science or laboratory work as the discovery that tells our climber which way to go. Without that, no one gets anywhere. Translational research is our climber using that knowledge to get uphill or to bring those discoveries to the benefit of patients. And a clinical trial tells us whether we’ve achieved the summit – or whether a treatment is more effective for patients than the previous standard of care.

Your support of the St. Baldrick’s Foundation makes every step of the climb possible. Already we have funded more than 1,500 grants, covering every stage of research. Here are a few recent examples of outcomes you can be proud of.

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Advocacy

Speak Up for Kids’ Cancer: February 2020

by St. Baldrick's Foundation
February 27, 2020

Read on for updates on the State of the Union, the President’s budget proposal, and events during Rare Disease Week on Capitol Hill.

Ambassador Shamari holding sign

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Facts

What You Should Know About Research into Rare Pediatric Cancers

by Becky C. Weaver, Chief Mission Officer, St. Baldrick's Foundation
February 25, 2020

Rare Disease Day is observed on the last day of February, but the St. Baldrick’s Foundation fights rare diseases year-round.

What is rare disease?

When it comes to cancer, or even diseases as a whole, “rare” is a misleading word.

In the U.S., a rare disease is defined as “any disease or condition that affects fewer than 200,000 people in the United States, or about 1 in 1,500 people.” About 72% of rare diseases are genetic, and of those, 70% start in childhood.

Worldwide, people with rare diseases make up less than 6% of the population. But more than 6,000 rare diseases have been identified so far, and they affect more than 300 million around the world. If these people were a country, they would be the world’s third largest nation.

rare disease stats

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Head-Shaving

Meet the Shavee – Pediatric Nurse in California to Go Bald for Cancer Research

by St. Baldrick's Foundation
February 24, 2020

As we head into the month of March, we’re gearing up for the height of Head-Shave season – the majority of St. Baldrick’s head-shaving events are held during March.

For the blog today, we’re introducing you to one of those who will become a first-time shavee this year, Melody Flores from San Francisco. Melody agreed to answer a few questions through email; she was on a trip to Africa while she did (and she’ll tell you why below). 

NurseMelody Flores will Brave the Shave on March 14, 2020.

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Research

Africa Brings Different Pediatric Cancer Challenges

by St. Baldrick's Foundation
February 15, 2020

On this International Childhood Cancer Day, let’s look at the continent of Africa and, specifically, a cancer researcher who is working to create a vaccine for a particularly frightening kind of cancer.

Doctor in lab

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Families

Keeping Your Marriage Strong When Your Child Has Cancer

by St. Baldrick's Foundation
February 14, 2020

Jack Callahan has been through a ton in just four years on Earth. Six rounds of chemotherapy, then a major surgery, plus three rounds of chemo with three stem cell transplants. Radiation – he’s only part of the way through 33 treatments of that –and hearing loss and hair loss; he spent a total of 117 nights in the hospital in 2019.

For parents Emily and Michael, though, you’d think Valentine’s Day isn’t top of mind today – you may be right, but that doesn’t mean that the young couple isn’t staying connected through this new reality. Both working parents had to scale back their hours, and the family must shuttle back and forth between home in Charlottesville, Virginia and treatments at Children’s Hospital of Philadelphia.

Yet, on this Valentine’s Day, we thought we’d share Emily’s perspective: how do they all manage to juggle the stresses and emotional strain of a kid with cancer?

family smiling

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Kids with Cancer

Honoring Kids with Cancer on National Pizza Day

by St. Baldrick's Foundation
February 7, 2020

It’s tough to beat pizza as a kid-friendly food. Birthday parties? Pizza. Not sure what to eat for dinner? Pizza. But on this National Pizza Day, February 9, 2020, there’s a connection between pizza, kids with cancer, and a pay-it-forward movement that continues – nearly 7 years after a girl named Hazel started it with a hand-crafted sign from her hospital room.

This Is the Message That Started It All

Send Pizza sign in windowLittle did Hazel’s grandmother and mother know, the hand-made sign meant to cheer Hazel up during treatment would go viral.

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Do What You Want

6 Ways to Help Kids With Cancer in February

by St. Baldrick's Foundation
February 1, 2020

February is a month that celebrates love — love between people, love of the game, and love of celebration! This February, what could be better than sharing the love by fundraising to #DFYchildhoodCancers? Check out these six fundraising tips to get you started.

toddler holding up heartOne of St. Baldrick’s 2020 Ambassadors, Hudson.

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Facts

What Is Neuroblastoma?

by St. Baldrick's Foundation
January 31, 2020
What is Neuroblastoma graphic

Susan L. Cohn, M.D., chair of the St. Baldrick’s Scientific Advisory Committee and world renowned neuroblastoma expert, explains what neuroblastoma is and how St. Baldrick’s research is contributing to better outcomes for patients.

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