Honored Kid

Mason Grahl

Age 20
Mason Grahl Kid Photo

Location

Oshkosh, WI, US

Diagnosis

Hepatoblastoma

Date of Diagnosis

December 2003

Status

In remission

Treated At

Children's Hospital of Wisconsin

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My Story

The hepatoblastoma liver tumor was diagnosed on Dec. 29, 2003, at 7 months old, and within a few days found out it was malignant (cancer). On Jan. 2, 2004 he had surgery to remove the tumor along with half of his liver. The Doctors felt they got all of the tumor, but still wanted to do chemo to be sure they did get all the cancer and that it will not come back. He finished the 4th and last round of chemo on April 12, 2004. It was 3 VERY long months of chemo. He's been in remission for almost 8 years. He has another rare disease called Prune Belly Syndrome, where there was a blockage in-utero in his urinary tract. There could be a possible link and he is in a research study to see if there is a link between liver tumor and PBS. He had fetal surgery to place a shunt that saved his life. He has a Mitrofanoff (stoma) to cath once a day. He was born with kidney failure and no abdominal muscles. After cancer, he went into complete kidney failure and needed a kidney. Mom donated a kidney to him when he was 3 years old. Mason is now 8 years old, 7 years in remission and 5 years post kidney transplant. He loves to drive his 4-wheeler, ride his bike, play baseball and basketball. He is a very active boy who loves life and just wants to be a kid

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