Honored Kid

Bailey J.

Age 25
Bailey J. Kid Photo

Location

South Lake Tahoe, CA, US

Diagnosis

Neuroblastoma

Date of Diagnosis

December 1999

Status

No evidence of disease

Treated At

UCSF Benioff Children's Hospital

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My Story

Bailey is now almost 19 years old and just finished his 12th full year of NO treatment! He was diagnosed at 9 months with Stage IV Neuroblastoma. At diagnosis, the doctors at UCSF told us they didn't expect him to live through the night. Well, he made it through that first night and they assured us he would never see his first birthday. After reaching his first birthday and achieving no evidence of disease, we were told that if he relapsed, there was no cure. He has relapsed 3 times and just recently celebrated his 16th bone marrow transplant birthday. Two of his relapses followed his bone marrow transplant! He has endured lots and lots of chemo, more surgeries than we can name, inter-operative radiation, external beam radiation, bone marrow transplant, stem cell transplant, and 2.5 years of high-dose accutane.  His freshman year of high school he had to have 22 screws and 2 titanium rods inserted in his spine from scoliosis and kyphosis that were a result of all of the radiation he received to his spine.  He truely is our miracle! His hope, and our hope, is that we can raise enough funds to help find a cure for childhood cancer so that no other child has to endure what he has. He is now an assistant to the Offensive Coordinator for the University of Nevada Reno Wolfpack Football Team!                  

The Childhood Cancer Ripple Effect

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