Emily H.Follow

Emily is a special little girl in so many ways. She was born with a rare syndrome called Beckwith Wiedemann Syndrome. At birth this syndrome caused her to have difficulty eating and to have weak muscles. With the aid of a feeding tube and occupational therapy, these obstacles were soon overcome. Another part of this syndrome is a high incidence of childhood cancers. Emily has been screened from birth, every 3 months for cancer and on her first birthday was diagnosed with a Wilm's Tumor. Emily was so brave through her surgery and 6 months of chemotherapy. She didn't let chemo keep her down, during that 6 months, she got her first tooth, walked for the first time, started eating on her own and started talking. Now Emily is almost two and is a happy, playful little girl. She loves her kitty cat, Willow. Emily loves Elmo, Abby Cadabby and the Care Bears. She is a big climber, and loves to swing and go on slides. Through cancer research, her cancer is a treatable childhood cancer. She is now in the maintenence phase of her treatment. We are very proud of her courageousness. She has taught us to be optimistic. Despite her bump in the road, we see everyday that she is growing, learning and getting stronger.