Honored Kid

Ethan K.

Ethan K. Kid Photo

Location

Norristown, PA, US

Diagnosis

Brain or spinal cord tumor

Date of Diagnosis

October 2009

Status

Passed away

Treated At

The Children's Hospital of Philadelphia

Change your kid's logo

My Story

Just 8 weeks after he was born, Ethan was taken to the hospital for symptoms associated with water on the brain and was transferred to Children's Hospital of Philadelphia. After emergency surgery to relieve the intra cranial pressure, an exploratory MRI revealed a tumor at the base of his brain behind his left eye. Our family's worst fear was realized. On October 20th, 2009, neurosurgeons performed a resection of the tumor but could only remove about half. In addition, the difficult surgery resulted in several complications. After an agonizing week, the result of the biopsy indicated a rare, slow growing Level 1 cancer know as Desmoplastic Infantile Ganglioglioma (DIG). The path forward was to monitor the tumor's growth before performing more invasive forms of treatment. However, on November 25th upon Ethan's first follow-up MRI, the cancer was discovered to be a much more aggressive Level 4—the tumor had grown by 50% and cancer had spread throughout his CNS. At 5 months old, Ethan underwent his third round of chemotherapy. This wonderful, beautiful boy brought constant joy to us. Our family and friends are thankful for each day he has here with us.

The Childhood Cancer Ripple Effect

Help Give Kids a Lifetime

Infants, children, teens and young adults are depending on us to find cures for childhood cancers — and to give survivors long and healthy lives.

Support lifesaving childhood cancer research today.

Photo submission policy

Please read the photo submission policy and accept below.

By submitting a photograph of yourself on www.StBaldricks.org, you agree to the following terms and conditions for submission of your photograph:

We strongly encourage all users to submit a before and after photo, so that donors and fellow participants can easily recognize and relate to one another.

Any photo containing cartoons, comics, celebrities, nudity, pornography, sexually explicit images or any copyrighted image (unless you own the copyright) is not permitted. This is because photos of celebrities and cartoon or comic images are generally copyrighted by the owner.

Uploading images of other people without their permission is also prohibited.

This photo submission policy applies to StBaldricks.org users. The St. Baldrick’s Foundation reserves the right to review all photos and to remove any photo for any reason at our sole discretion. If you see a photo on StBaldricks.org that you believe does not conform to this policy, email to WebQuestions@StBaldricks.org