Honored Kid

Brooke M.

Brooke M. Kid Photo

Location

Voorhees , NJ, US

Diagnosis

Neuroblastoma

Date of Diagnosis

January 2009

Status

Passed away

Treated At

Dana-Farber Cancer Institute The Children's Hospital of Philadelphia NIH Clinical Center

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My Story

Brooke was always such a happy and a tenderhearted little girl full of energy and a love for life. She never complained about anything, but near Christmas in 2009 she started limping and complaining of pain in her leg. She opened her gifts and then just wanted to lie on the couch with ice on her leg. Soon after she was unable to straighten her legs, the pain was unbearable and she started running a fever. Jan 5,2009 we were told that our precious only child had a very aggressive cancer and that had started in her right adrenal gland and had already spread through pretty much every bone in her body and 80-90% of her bone marrow. Since that awful day, Brooke endured 6 rounds of chemo, 3 surgeries, 2 stem cell transplants, 12 days of radiation, and a 6 month immunotherapy clinical trial. She never once complained about having cancer or going through any of her treatments (she actually got excited every time we need to go back to the hospital)! She amazed me every single day. Even after all of that, she still had a long way to go but was responding well to her treatments. We prayed that someday this would all be just a memory and she'd be back doing all the things she loved to do. Brooke finished initial treatment in April 2010 and was NED (No Evidence of Disease) until... December 12th, 2012 Brooke relapsed with a tumor on L4 of her spine. It was detected during routine 6 month scans. She prepared to participate in her 3rd clinical trial since her relapse. A relapse with her disease is considered terminal but Brooke was a fighter.  In Jan 2016, Brooke was due to start her 7th clinical trial since relapse and started having a great deal of pain in her legs, hips and back.   Scans were done and showed massive progression in her skull,  shoulders,  spine,  hips,  pelvis,  both femurs and liver and also spread to her knees. For a year and a half more, Brooke fought on with incredible grace. Her battle ended in June 2017.

The Childhood Cancer Ripple Effect

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