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DIAGNOSIS INFORMATION

Diagnosis:

Brain or spinal cord tumor

Treated at:

Palmetto Richland Memorial (Columbia, SC) Medical University of SC (Charleston, SC) Mass General (Boston, MA)

Current Status:

In remission

Age at Diagnosis:

2

Kaylyn W.

Location: Columbia, SC, US Age: 11

Kaylyn was diagnosed, at the age of 2 , with a supratentorial anaplastic ependymoma grade III in Nov 2002. Depending upon which doctor you talked with, they gave her between a 10 and 30 per cent chance of surviving. From that November to the following June, she had 2 head surgeries and 5 rounds of chemotherapy (at Palmetto Richland), then another chemotherapy and an autologous stem cell transplant (at MUSC). She was tumor free. Then in Aug 2004, on a routine checkup, we found that the tumor had returned. She had another surgery and radiation treatment (at Mass General). She has been tumor free since, a period of over 4 years. Today she is a normal 8 year old girl. We have been told that the tumor could return again at some time in the future.

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