cheyenne

We talk a lot about how childhood cancer affects the family. But what about the siblings, specifically? 2016 Ambassador Cheyenne’s mom opens up about how her 5-year-old son, Tristen, copes with his big sister’s childhood cancer journey, and how she and her husband balance their children’s needs.

It’s September. This is a big month for those of us in the childhood cancer community.

If you know anyone impacted by childhood cancer, I am sure your Facebook feed is blowing up with heart wrenching facts about how underfunded the research is and how rare childhood cancer ISN’T.

One thing that tends to be forgotten is how childhood cancer impacts the rest of the family. Most specifically, the siblings.

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Between holidays spent in the hospital and too many missed days of school, 2016 Ambassador Cheyenne’s childhood doesn’t look the same as other kids her age. Read on to hear how her mom, Amy, is fighting to take Cheyenne’s childhood back from cancer.

Cheyenne and her little brother, Tristen, spending time together during Cheyenne’s treatment.

We’ve all seen them — the sappy commercials with cute bald kids, or the heartbreaking photos on our social media feeds depicting children in the midst of horrible cancer treatments.

But what are those kids going through after those photos are taken? What are the other tolls cancer takes?

Our 12-year-old daughter Cheyenne has been undergoing chemotherapy treatment every day for the past two years, and she still has five more months of treatment to go.

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2016 Ambassador Cheyenne’s childhood cancer journey began two years ago when her doctors discovered a life-threatening tumor blocking her airway. Cheyenne’s grandmother Dani reflects on what that day was like — and how it inspired her to host her own St. Baldrick’s event and shave in her granddaughter’s honor.

Shavees and volunteers at the “Be The Hope!” event form a cancer ribbon.

On January 30, 2015, I received a call that changed my family’s life forever.

It was the day I found out that my 9-year-old granddaughter was being airlifted to the hospital because a fast-growing tumor was crushing her windpipe.

It felt like the ground went out from under me. It was surreal. I thought, “this happens to other people, not to us.”

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We may be welcoming new Ambassadors soon, but not before we give our 2016 Ambassadors a chance to share some final thoughts about the past year. Read on to find out just how much the St. Baldrick’s community means to these amazing kids and their families.

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We asked Ambassador Cheyenne who her heroes are. Her answer? “My mom and dad.” So today, for National Parents’ Day, we asked her to tell us why — and she gave us 10 great reasons. (Number 10 is our favorite!)

Cheyenne with her mom and dad, Amy and Levi.

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Birthdays are a time of celebration for most kids — a big party with presents, cake and balloons. But for Ambassador Cheyenne and her family, her upcoming birthday holds much more meaning. Read on to see what Cheyenne’s mom, Amy, is reflecting on this year.

I’ve always thought of birthdays as a momentous occasion to celebrate life. With Cheyenne’s 11th birthday coming up, a little more than one year after her childhood cancer diagnosis, this celebration of life is taking on an entirely new meaning.

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On January 30, 2015, Cheyenne couldn’t breathe. Hours and one helicopter ride to the hospital later, her parents received the worst news. Her airway was being blocked by a tumor, specifically T-lymphoblastic lymphoma.

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On January 30, one week before her 10^th birthday, Cheyenne was having trouble breathing. After a trip to the local ER, she was air lifted to Children’s Hospital Colorado in Denver.

Her doctors discovered a large, life-threatening tumor blocking her airway. Soon after, Cheyenne was diagnosed with T cell lymphoblastic lymphoma.

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